| HEART
DISEASE
One of the most difficult
medical issues a child with Down syndrome can face is heart disease. In
the not-to-distant past, children with Down syndrome faced bleak outcomes
with a diagnosis of heart disease. But today, medical advances, particularly
in cardiology and pediatric cardiology have enabled children with Down
syndrome and heart disease to live long and happy lives. Please take a
look at the web sites and links to learn more about advances in cardiology
and what to expect if your child has a diagnosis of heart disease.
Links:
Tetrology of Fallot
http://health.discovery.com/encyclopedias/63.html
Atrial Septal Defects
http://health.discovery.com/encyclopedias/15.html
Ventricular Septal Defects
http://health.discovery.com/encyclopedias/69.html
PediHeart.org
http://www.pediheart.org/parents/defects/index.html
American Heart Association
http://www.americanheart.org/presenter.jhtml?identifier=1200000
Recommended
Reading:
Heart Disease in Persons with Down Syndrome
by B. Marino and S.M. Pueschel. Paul Brookes
Pub, 1996
"In collaboration with expert physicians from around the world, the
authors have compiled a comprehensive medical resource devoted exclusively
to congenital heart disease in children and adults with DS. Includes information
and recent research findings on cardiac malformations and anomalies, heart
and lung pathology, hemodynamic evaluations, and surgical intervention.
Ideal for cardiologists, pediatricians, family physicians, educators and
therapists."
Medical & Surgical
Care for Children with Down Syndrome: A Guide for Parents
Edited by D.C. Van Dyke, M.D., Philip Mattheis, M.D., Susan Schoon Eberly,
M.A., and Janet Williams, R.N., Ph.D.
Much-needed medical and surgical information in easy-to-understand language.
Topics include medical decision making, preventative care, anesthesia
concerns, heart disease, thyroid problems, skin conditions, gastrointestinal
problems, leukemia, reproductive issues, ENT problems, orthopedic conditions,
dental issues, and much more. $14.95 isbn# 0-933149-54-9 WoodbineHouse
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